The national registry for organ donation & transplant is as follows:-
I - Organ Transplant Registry:
The Organ Transplant Registry shall include demographic data about the patient waiting
for transplant (Organ / hospital wise waiting list), donor (Living Donor including Related
Donor, Other than Near Related Donor, Swap Donors and Deceased Donor), hospitals,
follow up details of recipient and donor etc., and the data shall be collected from all
retrieval and transplant centers.
Data collection may preferably be through a web-based interface or paper submission
and the information shall be maintained both specific organ wise and also in a
consolidated formats.
The hospital or Institution shall update its website regularly in respect of the total number
of the transplantations done in that hospital or institution along with reasonable detail of
each transplant and the same data should be accessible for compilation, analysis and
further use by authorised persons of respective State Governments and Central
Government.
II - Organ Donation Registry:
The Organ Donation Registry shall include demographic information of donor (both living
and deceased), hospital, height and weight, occupation, primary cause of death in case
of deceased donor, associated medical illnesses, relevant laboratory tests, donor
maintenance details, driving license or any other document of pledging donation,
donation requested by whom, transplant coordinator, organs or tissue retrieved,
outcome of donated organ or tissue, details of recipient, etc.
III - Tissue Registry:
The Tissue Registry shall include demographic information on the tissue donor, site of
tissue retrieval or donation, primary cause of death in case of deceased donor, donor
maintenance details in case of brain stem dead donor, associated medical illnesses,
relevant laboratory tests, driving license or any other document pledging donation,
donation requested by whom, identity of counsellors, tissue(s) or organ(s) retrieved,
demographic data about the tissue recipient, hospital conducting transplantation,
transplant waiting list and priority list for critical patients, if these exist, indication(s) for
transplant, outcome of transplanted tissue, etc.
IV - Organ Donor Pledge Registry:
The National Organ Donor Register is a computerized database which records the
wishes of people who have pledged for organ and tissue donation. Person during their
life can pledge to donate their organ(s) or tissue(s) after their death through Form 7 and
submit it in paper or online to the respective networking organization and pledger has
the option to withdraw the pledge through intimation.
There are many hospitals and organizations those are also maintaining the list of
persons who have pledged organ donation with them, will be passed to National Organ
& Tissue Transplant Organisation for National Register.