FAQs

When it comes to organ donations and Transplants, Most of us have many questions in minds. Lack of awareness is one of the main cause of scarcity of organs and high numbers of deaths of 'End stage organ failure' Patients and 'Transplant' patients. YMC Organ Donation and Transplant Foundation aims to assist the process of saving lives by spreading awareness of Organ donation and Transplants. We have collated 200+ common questions and provided answers for the benefit of our members. Come join our foundation and assist us in our mission.

The Central Government has established a National Human Organs and Tissues Removal & Storage Network named NOTTO, which stands for National Organ and Tissue Transplant Organisation. NOTTO will have five Regional Networks ROTTO

(Regional Organ & Tissue Transplant Organization) and each Region of the country will develop SOTTO (State Organ and Tissue Transplant Organisation) in every State/ UT.

Each hospital of the country related to transplant activity, whether as retrieval or transplant, has to link with NOTTO, through ROTTO/SOTTO as a part of National Networking.

The national registry for organ donation & transplant is as follows:-

I - Organ Transplant Registry:
The Organ Transplant Registry shall include demographic data about the patient waiting for transplant (Organ / hospital wise waiting list), donor (Living Donor including Related Donor, Other than Near Related Donor, Swap Donors and Deceased Donor), hospitals, follow up details of recipient and donor etc., and the data shall be collected from all retrieval and transplant centers.
Data collection may preferably be through a web-based interface or paper submission and the information shall be maintained both specific organ wise and also in a consolidated formats.
The hospital or Institution shall update its website regularly in respect of the total number of the transplantations done in that hospital or institution along with reasonable detail of each transplant and the same data should be accessible for compilation, analysis and further use by authorised persons of respective State Governments and Central Government.

II - Organ Donation Registry:
The Organ Donation Registry shall include demographic information of donor (both living and deceased), hospital, height and weight, occupation, primary cause of death in case of deceased donor, associated medical illnesses, relevant laboratory tests, donor maintenance details, driving license or any other document of pledging donation, donation requested by whom, transplant coordinator, organs or tissue retrieved, outcome of donated organ or tissue, details of recipient, etc.

III - Tissue Registry:
The Tissue Registry shall include demographic information on the tissue donor, site of tissue retrieval or donation, primary cause of death in case of deceased donor, donor maintenance details in case of brain stem dead donor, associated medical illnesses, relevant laboratory tests, driving license or any other document pledging donation, donation requested by whom, identity of counsellors, tissue(s) or organ(s) retrieved, demographic data about the tissue recipient, hospital conducting transplantation, transplant waiting list and priority list for critical patients, if these exist, indication(s) for transplant, outcome of transplanted tissue, etc.

IV - Organ Donor Pledge Registry:
The National Organ Donor Register is a computerized database which records the wishes of people who have pledged for organ and tissue donation. Person during their life can pledge to donate their organ(s) or tissue(s) after their death through Form 7 and submit it in paper or online to the respective networking organization and pledger has the option to withdraw the pledge through intimation.
There are many hospitals and organizations those are also maintaining the list of persons who have pledged organ donation with them, will be passed to National Organ & Tissue Transplant Organisation for National Register.

Required request is a way of getting consent of the person for the cadaver donor transplantation. Any person, who wishes to donate his/her organ and tissue after his death, has to affirmatively make a pledge that his/her organs after death can be used for transplantation and saving life of other person.
At the time of death, Hospital staff approaches family of the deceased person for donating their loved ones organs and tissues to save life of others.

In the presumed consent approach, every person is supposed to be agreeing for organ donation at the time of death, unless the person has decided during his/her life time that he/she is not willing for organ and tissue donation after death. There are countries in the world who have presumed consent approach for organ donation and they believe that presumed consent approach usually increase organ donation rate. However, all do not agree for the same. India does not follow this approach.

Informed consent is a process, which is not specific to organ and tissue donation. This is a process of reaching an agreement based on a full understanding of what will take place, in the form of medical treatment. Informed consent involves information sharing as well as the ability to understand and freely make a choice in relation to medical treatment.

The NOTTO Organ Donor Register is a computerized database which records the wishes of people who have pledged for organ and tissue donation and decided that, after their death, they want to leave a legacy of life for others. There are many hospitals and organizations those are also maintaining the list of persons who have pledged organ donation with them, will be passed to NOTTO website for National Register.

Everyone irrespective of age or health can join the NOTTO Organ Donor Register. Joining the Register expresses a wish to help others by donating organs or tissues after death but importantly, joining the Register also is a way to give legal consent or authorization for donation to take place.

A registry is an essential part of understanding who and where potential donors are. A registry gives a planner enough information to devise strategies to get more public cooperation and commitment towards organ donation. Having a registry in place allows doctors and transplant coordinators to check if a brain dead person wished to donate and then approaching the family for consent becomes easier. It helps in saving crucial time in the process of organ donation.

When an accident victim is brought to a hospital for emergency treatment, an FIR has to be filed by the family in the nearest police station. Such cases are usually called medico- legal cases. Also, any medical treatment (for suicide, assault, poisoning or fall) which needs that the police should be notified becomes a medico-legal case.
The police will conduct an inquest about the incident and take charge of the case. A forensic doctor will examine the patient and will allow or deny organ retrieval.

Yes. Government of India has started National Organ and Transplant Program (NOTP), under which patients below poverty line are supported for the cost of transplant as well as cost of immunosuppressant after transplant for one year. Other than this, renal transplant in all public hospitals is subsidized as per Government of India policy.

Organ transplantation is undertaken only as a lifesaving treatment. It is best for the transplant team to decide whether to go ahead with a live organ donation, keeping in mind the two issues of doing no harm to the donor, and doing good for the recipient. Only the transplant team can decide whether the benefit to the patient is worth the risk faced by the donor. The transplant team takes into account the mortality and morbidity of the donor, though this can be accurately predicted.
About YMC Organ Donation and Transplant Foundation
A non-profit organization to increase awareness about organ donation and transplants
YMC Organ Donation and Transplant Foundation partners with Corporates, Hospitals and pharmaceutical companies to help ‘End stage organ failure’ patients and ‘Transplant’ patients to lead a better quality of life. This foundation is formed by Philanthropists, Transplant surgeons and committed enthusiasts.
Registered Address
1602 , Kesar Polaris, Plot number 126,
5th Lane, Hindu Colony,
Dadar (E), Mumbai 400014
+91 9619293241 | +91 8850578323
Email contact@yateenfoundation.com
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